Research Priorities for Pediatric Emergency Care to Address Disparities by Race, Ethnicity, and Language

• Authors: Elyse N. Portillo, Baylor College of Medicine; Christopher Adam Rees, Emory University; Emily A. Hartford, University of Washington; Zachary C. Foughty, Baylor College of Medicine; Michelle L. Pickett, Medical College of Wisconsin; Colleen K. Gutman, University of Florida, Gainesville; Bashar S. Shihabuddin, The Ohio State University; Eric W. Fleegler, Boston Children's Hospital; Corrie E. Chumpitazi, Duke University; Tiffani J. Johnson, University of California, Davis; David Schnadower, University of Cincinnati; Kathy N. Shaw, University of Pennsylvania
• Journal Title: Pediatric Emergency Care Research Priorities for Race, Ethnicity, and Language Disparities
• Volume: Volume 6, Number 11
• Publisher: JAMA Network | 2023-11-13, Pages e2343791-None
• Type of Work: Article | Final Publisher PDF
• Publisher DOI: http://doi.org/10.1001/jamanetworkopen.2023.43791
• Subjects: Health Sciences, General; Health Sciences, Public Health
• Keywords: Health care disparities; pediatric emergency care

Abstract

Importance Health care disparities are well-documented among children based on race, ethnicity, and language for care. An agenda that outlines research priorities for disparities in pediatric emergency care (PEC) is lacking. Objective To investigate research priorities for disparities in PEC among medical personnel, researchers, and health care–affiliated community organizations. Design, Setting, and Participants In this survey study, a modified Delphi approach was used to investigate research priorities for disparities in PEC. An initial list of research priorities was developed by a group of experienced PEC investigators in 2021. Partners iteratively assessed the list through 2 rounds of electronic surveys using Likert-type responses in late 2021 and early 2022. Priorities were defined as achieving consensus if they received a score of highest priority or priority by at least 60% of respondents. Asynchronous engagement of participants via online web-conferencing platforms and email correspondence with electronic survey administration was used. Partners were individuals and groups involved in PEC. Participants represented interest groups, research and medical personnel organizations, health care partners, and laypersons with roles in community and family hospital advisory councils. Participants were largely from the US, with input from international PEC research networks. Outcome Consensus agenda of research priorities to identify and address health care disparities in PEC. Results PEC investigators generated an initial list of 27 potential priorities. Surveys were completed by 38 of 47 partners (80.6%) and 30 of 38 partners (81.1%) in rounds 1 and 2, respectively. Among 30 respondents who completed both rounds, there were 7 family or community partners and 23 medical or research partners, including 4 international PEC research networks. A total of 12 research priorities achieved the predetermined consensus threshold: (1) systematic efforts to reduce disparities; (2) race, ethnicity, and language data collection and reporting; (3) recognizing and mitigating clinician implicit bias; (4) mental health disparities; (5) social determinants of health; (6) language and literacy; (7) acute pain–management disparities; (8) quality of care equity metrics; (9) shared decision-making; (10) patient experience; (11) triage and acuity score assignment; and (12) inclusive research participation. Conclusions and Relevance These results suggest a research priority agenda that may be used as a guide for investigators, research networks, organizations, and funding agencies to engage in and support high-priority disparities research topics in PEC.