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Author Notes:

Miranda Hill, Email: miranda.hill@ucsf.edu

MH designed the study, performed the research, and analyzed the data. NH made essential contributions to the study design, implementation, analysis, and assisted with writing and editing. MH, JS, AS, MB, MK, GR and NH. wrote and edited the paper. All authors have read and approved the final manuscript.

A debt of gratitude is owed to the participants, community advocates, and activists who assisted with this research. This would not be possible without you. Among those to be mentioned, Transgender Heaven, LaGender, Inc., Someone Cares, the Mazzoni Center in Philadelphia, and many other organizations and individuals who provided support along the way (to remain anonymous). Thank you for your generosity, time, and effort.

The authors declare that there is no conflict of interest.

Subjects:

Research Funding:

This work was supported by the Ramsey Dissertation Award from the University of Georgia’s Department of Health Promotion & Behavior, the National Institutes of Mental Health (T32MH19105). ADF’s contributions to the research reported in this publication were supported by the National Institute of Nursing Research (K23NR020208). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

Keywords:

  • Science & Technology
  • Life Sciences & Biomedicine
  • Health Policy & Services
  • Public, Environmental & Occupational Health
  • Health Care Sciences & Services
  • Community health interventions
  • Natural helping networks
  • Transgender women
  • HIV
  • AIDS
  • Social network analysis
  • HEALTH
  • CARE

The Helping Networks of Transgender Women Living with HIV

Tools:

Journal Title:

JOURNAL OF COMMUNITY HEALTH

Volume:

Volume 48, Number 3

Publisher:

, Pages 480-488

Type of Work:

Article | Final Publisher PDF

Abstract:

Transgender women living with HIV face significant barriers to healthcare that may be best addressed through community-centered interventions holistically focused on their HIV-related, gender-related, and other important needs. Community health ambassador (CHA) interventions (education and training programs designed to engage communities and community leaders in health promotion) may be an effective option, though information about the natural helping networks of this vulnerable population is too limited to inform the implementation of this approach. This study uses social network analysis to describe the natural helping networks of transgender women living with HIV, their help-seeking patterns for HIV-related, gender-related, and ancillary resources, and the characteristics of potential network ambassadors. From February to August 2019, transgender women living with HIV in the US (N = 231) participated a 30-min online survey asking them to describe their natural helping networks (N = 1054). On average, participants were embedded within natural helping networks consisting of 4–5 people. They were more likely to seek help from informal network members vs. formal service providers (p <.01), and from chosen family and partners/spouses (p <.05) above other social connections. Older network members (p <.01), other transgender women (p <.05), and those with whom they regularly engaged face-to-face (p <.01) (vs. social technology) were identified as potential network ambassadors for HIV-, gender-related, and other important issues. These findings suggest an opportunity to develop CHA interventions that leverage existing help networks and potential network ambassadors to promote equitable access to HIV, gender-affirming, and other crucial resources among this medically underserved group.

Copyright information:

© The Author(s) 2023

This is an Open Access work distributed under the terms of the Creative Commons Attribution 4.0 International License (https://creativecommons.org/licenses/by/4.0/).
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