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Author Notes:

Rondalya D. DeShields, RN, MSN, 140 Bergen Street, Room D1674, Newark, NJ 07103, Email: deshierd@njms.rutgers.edu

The authors thank the study participants, community stakeholders, and staff from each HPTN 064 study site and the HPTN 064 Community Working Group. In addition, they acknowledge Kathy Hinson, Lydia Soto Torres, Sally L. Hodder, Jessica Justman, Shobha Swaminathan, Wafaa El Sadr, Lynda Emel, LaTanya Lewis Johnson, Lorenna Rodriguez, Christopher C. Watson, Cheryl Cokley, Rhonda White, and Jontraye Davis.

Subjects:

Research Funding:

This work was supported by the National Institute of Allergy and Infectious Diseases, National Institute on Drug Abuse, and National Institute of Mental Health (cooperative agreement nos. UM1 AI068619, UM 1AI068617, and UM1 AI068613); University of North Carolina Clinical Trials Unit (AI069423); University of North Carolina Clinical Trials Research Center of the Clinical and Translational Science Award (RR 025747); University of North Carolina Center for AIDS Research (AI050410); Emory University HIV/AIDS Clinical Trials Unit (5UO1AI069418), Center for AIDS Research (P30 AI050409), and Clinical and Translational Science Award (UL1 RR025008); The Terry Beirn Community Programs for Clinical Research on AIDS Clinical Trials Unit (5 UM1 AI069503–07); The Johns Hopkins Adult AIDS Clinical Trial Unit (AI069465) and The Johns Hopkins Clinical and Translational Science Award (UL1 RR 25005); and the HPTN Scholars Program

Ms. Haley’s time was supported by the National Institute of Mental Health of the National Institutes of Health under Award Number F31MH105238 and the Robert W. Woodruff Pre-Doctoral Fellowship of the Emory University Laney Graduate School. The views expressed herein are solely the responsibility of the authors and do not necessarily represent the official views of the National Institute of Allergy and Infectious Diseases, the National Institute of Mental Health, the National Institutes of Health, the HPTN, or its funders.

Keywords:

  • Adult
  • Advisory Committees
  • African Americans
  • Community Participation
  • Community-Based Participatory Research
  • Cooperative Behavior
  • Female
  • HIV Infections
  • Humans
  • Longitudinal Studies
  • Poverty
  • United States

Building partnerships and stakeholder relationships for hiv prevention: Longitudinal cohort study focuses on community engagement

Tools:

Journal Title:

Progress in Community Health Partnerships: Research, Education, and Action

Volume:

Volume 14, Number 1

Publisher:

, Pages 29-42

Type of Work:

Article | Post-print: After Peer Review

Abstract:

Background: African American women bear disproportionate human immunodeficiency virus (HIV) burden in the United States, yet are often underrepresented in clinical research. Community engagement may decrease research mistrust and increase participation. We describe strategies used to engage community partners and female participants in a multisite HIV incidence study, HIV Prevention Trials Network (HPTN) 064. Objectives: HPTN 064 assessed HIV incidence among women in 10 geographic areas chosen for both high prevalence of HIV and poverty. Methods: Women were recruited using venue-based sampling and followed for six to 12 months. Recruitment and engagement approaches aligned with the National Institutes of Health (NIH) Director’s Council of Public Representatives (COPR) Community Engagement Framework’s. Results: Results showed engagement activities increased rapport and established new partnerships with community stakeholders. Study sites engaged 56 community organizations with 2,099 women enrolled in 14 months. Final retention was 94%. Conclusions: The COPR model maximized inclusiveness and participation of African American women impacted by HIV, supported recruitment and retention, and was the cornerstone of community engagement.
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