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Author Notes:

Dr N. Kasparian, Cincinnati Children’s Center for Heart Disease and Mental Health, Cincinnati Children’s Hospital, 3333 Burnet Avenue (MLC 7039), Cincinnati, OH 45229, USA. Tel: +1-617-838-1202. E-mail: nadine.kasparian@cchmc.org

The first draft of the manuscript was written by Nadine Kasparian, Dawn Ilardi, Anjali Sadhwani and Renee Sananes, and all authors contributed to manuscript review and revision

We gratefully acknowledge our colleagues and fellow providers from across North America, for their thoughtful responses to the survey, as well as the research assistance provided by Meghan Ford, Jennifer Hembree, Nicola Porter, Diya Sanghavi, and Jessica Cowin. We also thank the Cardiac Neurodevelopmental Outcome Collaborative Publications Committee, for insightful feedback on an earlier version of this manuscript.

The authors have no potential, perceived, or real conflicts of interest to declare. No honorarium, grant, or other form of payment was given to any author to produce this manuscript.


Research Funding:

Nadine Kasparian is the recipient of a National Heart Foundation of Australia Future Leader Fellowship (101229) and support from the Heart Institute Research Core at Cincinnati Children’s Hospital.


  • Science & Technology
  • Life Sciences & Biomedicine
  • Cardiac & Cardiovascular Systems
  • Pediatrics
  • Cardiovascular System & Cardiology
  • CHD
  • COVID-19
  • pandemic
  • telehealth
  • neurodevelopment
  • disparities
  • HOME

Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: a site survey from the Cardiac Neurodevelopmental Outcome Collaborative

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Journal Title:



, Pages 1-8

Type of Work:

Article | Final Publisher PDF


Objective: COVID-19 has markedly impacted the provision of neurodevelopmental care. In response, the Cardiac Neurodevelopmental Outcome Collaborative (CNOC) established a Task Force to assess the telehealth practices of cardiac neurodevelopmental programs during COVID-19, including adaptation of services, test protocols and interventions, and perceived obstacles, disparities, successes, and training needs. Study Design: A 47-item online survey was sent to 42 CNOC member sites across North America within a 3-week timeframe (22 July to 11 August 2020) to collect cross-sectional data on practices. Results: Of the 30 participating sites (71.4% response rate), all were providing at least some clinical services at the time of the survey and 24 sites (80%) reported using telehealth. All but one of these sites were offering new telehealth services in response to COVID-19, with the most striking change being the capacity to offer new intervention services for children and their caregivers. Only a third of sites were able to carry out standardized, performance-based, neurodevelopmental testing with children and adolescents using telehealth, and none had completed comparable testing with infants and toddlers. Barriers associated with language, child ability, and access to technology were identified as contributing to disparities in telehealth access. Conclusions: Telehealth has enabled continuation of at least some cardiac neurodevelopmental services during COVID-19, despite the challenges experienced by providers, children, families, and health systems. CNOC provides a unique platform for sharing challenges and successes across sites, as we continue to shape an evidence-based, efficient, and consistent approach to the care of individuals with CHD.

Copyright information:

© The Author(s) 2022

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