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National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, 4770 Buford Highway NE, Atlanta, GA, 30341, USA., kgilbertson@alumni.emory.edu
We thank the National Fragile X Foundation, collaborating fragile X clinics (listed below), the national coordinator Amie Milunovich, current and former members of the FORWARD Steering Committee: Elizabeth Berry Kravis (PI), MD, PhD, Milen Velinov (PI), MD, PhD, Nicole Tartaglia (PI), MD, Craig Erikson (PI), MD, Walter Kauffman, MD, Stephanie Sherman PhD, Julie Bolen, PhD, MPH, Ted Brown, MD, PhD, Catharine Riley, PhD, MPH, and Tony Ferlenda, MPA for their ongoing partnership and support. We also thank Dr. Catharine Riley for helping to conceptualize the study and reviewing and revising the data analysis proposal, and Dr. Rieza Soelaeman for her assistance on the analysis. Finally, FORWARD would not be possible without individuals who have FXS, their families, and the health care teams who partner with them to provide their care.
Declarations of interest: None.
The FORWARD project was supported by the Cooperative Agreement Numbers DD000753, DD001185, DD001186, DD001190, DD001188, and DD001189 funded by the Centers for Disease Control and Prevention. The findings and conclusions in this publication are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention. Elizabeth Berry Kravis, MD, PhD, Milen Velinov, MD, PhD, Nicole Tartaglia, MD, Craig Erikson, MD, and Howard Andrews, PhD were PIs on the study.