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Author Notes:

Helen Kitchen hkitchen@teamdrg.com

The authors acknowledge Nicki Hoskins of DRG Abacus for medical writing support.

AT contributed to study concept and design, data collection, data analysis, interpretation of results and drafting of the manuscript.

He also acts as overall guarantor of this work.

FA contributed to study concept and design.

NA contributed to data analysis and interpretation of results.

DB contributed to interpretation of results.

HK contributed to study concept and design, data analysis, interpretation of results and drafting of the manuscript.

All authors contributed to the review, critical revision and final approval of the manuscript.

HK, AT and NA are employees of DRG Abacus, a healthcare research company that consults with various pharmaceutical and biotechnology companies.

FA is an employee of Ferring, which markets treatments for nocturia.

DL is a consultant to Ferring and Merck.

The study was approved by the New England Independent Review Board (NEIRB), Reference Number 16-058. Participants were provided with an informed consent form (approved by the NEIRB), which had to be understood and signed prior to any data collection.

The interview transcripts are not publicly available to protect participant confidentiality, but the open-ended discussion sections of the interview transcripts are available from the corresponding author on reasonable request.

Subject:

Research Funding:

Funding for this work was provided by Ferring Pharmaceuticals A/S.

Keywords:

  • Science & Technology
  • Life Sciences & Biomedicine
  • Health Care Sciences & Services
  • Health Policy & Services
  • STANDARDIZATION SUB-COMMITTEE
  • CONTINENCE SOCIETY
  • DATA SATURATION
  • POPULATION
  • SLEEP
  • TERMINOLOGY
  • IMPACT
  • LIFE

Patients' Lived Experiences of Nocturia: A Qualitative Study of the Evening, the Night, and the Next Day

Tools:

Journal Title:

Patient - Patient-Centered Outcomes Research

Volume:

Volume 10, Number 6

Publisher:

, Pages 711-718

Type of Work:

Article | Final Publisher PDF

Abstract:

Background: Nocturia, waking to urinate two or more times during the night, is a chronic condition associated with significant patient burden due to sleep disruption. This study aimed to explore the lived experiences of patients with nocturia in terms of the disruption to their lives during the night and day. Methods: Adult patients in the US diagnosed with nocturia were recruited for face-to-face qualitative interviews. Thematic analysis of patients’ narratives, taking a phenomenological interpretative approach, summarised their experiences throughout the night and day, including any apparent contrasts between patients. Results: Twenty patients (10 male, 10 female) aged between 39 and 80 years, averaging three night-time voids, were interviewed. Analysis revealed that nocturia has a substantial impact on sleep quality and quantity, with the frequency of night-time voids a key driver of this. In addition to night-time phenomena, patients faced various difficulties the next day, including day-time tiredness, lack of energy and concerns related to emotional wellbeing, social functioning and cognitive functioning. All of these limited patients’ capacity to work, perform daily activities or fulfil role responsibilities. Patients’ lifestyles influenced experience, where younger patients in employment more readily emphasised the day-time physical and psychosocial burdens. Patients employed coping behaviours in an attempt to lessen the severity of nocturia and its impact, which were both physician-led and self-taught. Conclusions: While the symptom of nocturia only occurs during the night, the impact is longer lasting, affecting functioning and wellbeing throughout the following day. Patients’ circumstances can affect the extent of their burden; recognising this can improve effective delivery of patient-centred care.

Copyright information:

© 2017 The Author(s)

This is an Open Access work distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (http://creativecommons.org/licenses/by-nc/4.0/).

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