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Author Notes:

CORRESPONDENCE: Dr. Michelle Gurvitz, Department of Cardiology, Boston Children’s Hospital, 300 Longwood Avenue, Boston, Massachusetts 02115. E-mail: Michelle.gurvitz@cardio.chboston.org.

The authors acknowledge the following members of the NHLBI staff: Jonathan Kaltman, Ellen Rosenberg, Charlene Schramm, and Monica Shah.

Disclosures: The authors have reported that they have no relationships relevant to the contents of this paper to disclose. The views and conclusions in this report are those of the authors and do not necessarily represent the official position of the National Institutes of Health or the Centers for Disease Control and Prevention.

Subject:

Research Funding:

National Heart, Lung, and Blood Institute : NHLBI

Adult Congenital Heart Association

Keywords:

  • Science & Technology
  • Life Sciences & Biomedicine
  • Cardiac & Cardiovascular Systems
  • Cardiovascular System & Cardiology
  • congenital
  • heart defects
  • outcomes
  • pregnancy
  • single ventricle
  • sudden cardiac death
  • tetralogy of Fallot
  • 2009 CONSENSUS CONFERENCE
  • SURGICALLY REPAIRED TETRALOGY
  • ARTERIAL SWITCH OPERATION
  • AORTIC COARCTATION REPAIR
  • ACCESS RESEARCH TRIAL
  • TERM-FOLLOW-UP
  • FONTAN PATIENTS
  • GENERAL-POPULATION
  • GREAT-ARTERIES
  • UNITED-STATES

Emerging Research Directions in Adult Congenital Heart Disease A Report From an NHLBI/ACHA Working Group

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Journal Title:

Journal of the American College of Cardiology

Volume:

Volume 67, Number 16

Publisher:

, Pages 1956-1964

Type of Work:

Article | Final Publisher PDF

Abstract:

© 2016 American College of Cardiology Foundation.Congenital heart disease (CHD) is the most common birth defect, affecting about 0.8% of live births. Advances in recent decades have allowed >85% of children with CHD to survive to adulthood, creating a growing population of adults with CHD. Little information exists regarding survival, demographics, late outcomes, and comorbidities in this emerging group, and multiple barriers impede research in adult CHD. The National Heart, Lung, and Blood Institute and the Adult Congenital Heart Association convened a multidisciplinary working group to identify high-impact research questions in adult CHD. This report summarizes the meeting discussions in the broad areas of CHD-related heart failure, vascular disease, and multisystem complications. High-priority subtopics identified included heart failure in tetralogy of Fallot, mechanical circulatory support/transplantation, sudden cardiac death, vascular outcomes in coarctation of the aorta, late outcomes in single-ventricle disease, cognitive and psychiatric issues, and pregnancy.

Copyright information:

© 2016 American College of Cardiology Foundation. Published by Elsevier Inc. All rights reserved.

This is an Open Access work distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (http://creativecommons.org/licenses/by-nc-nd/4.0/).

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