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Author Notes:

Correspondence: hbchin@emory.edu

The authors thank Kathleen Hartnett for her comments on earlier drafts of this manuscript.

We also thank all of the women who volunteered to participate in our interview and the student volunteers.

For a full list of contributions, please refer to the full article.

The authors declare that they have no competing interests.

Subjects:

Research Funding:

Funding for this research was provided by The Eunice Kennedy Shriver National Institute of Child Health and Human Development Grant 1R01HD066059 and Reproductive, Perinatal, & Pediatric Training Grant T32HD052460, and the Health Resources and Service Administration Training Grant T03MC07651-06.

Keywords:

  • Science & Technology
  • Life Sciences & Biomedicine
  • Public, Environmental & Occupational Health
  • Obstetrics & Gynecology
  • Pilot testing
  • Telephone interview
  • Recruitment
  • Survivorship
  • Cancer
  • Fertility
  • CANCER
  • FERTILITY
  • CHALLENGES
  • ADULTS
  • HEALTH

Piloting a computer assisted telephone interview: the FUCHSIA Women's Study

Tools:

Journal Title:

BMC Women's Health

Volume:

Volume 14, Number 1

Publisher:

, Pages 149-149

Type of Work:

Article | Final Publisher PDF

Abstract:

Background: Loss of fertility has been reported as an important concern of reproductive age women diagnosed with cancer. The Furthering Understanding of Cancer, Health, and Survivorship In Adult (FUCHSIA) Women's Study examines how cancer treatment affects the fertility of cancer survivors who were diagnosed during their reproductive years. In this paper we discuss the process of developing and pilot testing the FUCHSIA computer assisted telephone interview (CATI). Methods: The CATI was developed in several phases and pilot tested twice to evaluate several aspects of the instrument including question sequencing, understandability of the questions, and women's comfort with certain questions. Participants were recruited from cancer and infertility support groups and study team contacts. Results: Fifty-two women were recruited and participated in the first pilot. The participants had a mean age of 31.5 years, 17.3% had cancer, and 38.5% experienced a period of infertility. Twenty-four women participated in the second pilot with similar representation. Conclusions: The collection of detailed information on reproductive outcomes with the CATI may improve the understanding of how cancer treatment during the reproductive years affects female fertility. The pilot studies provided important information to improve the CATI before the full study. Our comprehensive recruitment strategy allowed us to interview a diverse group of women to ensure that questions and answer choices were easily interpreted, check complicated skip patterns and the flow of questions, and evaluate the length of the interview. This experience can be used to help inform others in what steps can be useful for developing telephone interviews for research studies.

Copyright information:

© 2014 Chin et al.

This is an Open Access work distributed under the terms of the Creative Commons Attribution 4.0 International License (https://creativecommons.org/licenses/by/4.0/).
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