by
Krishna Acharya;
Steven R Leuthner;
Isabella Zaniletti;
Jason Z Niehaus;
Christine E Bishop;
Carl H Coghill;
Ankur Datta;
Narendra Dereddy;
Robert DiGeronimo;
Laura Jackson;
Con Yee Ling;
Nana Matoba;
Girija Natarajan;
Sujir Pritha Nayak;
Amy Brown Schlegel;
Jamie Seale;
Anita Shah;
Julie Weiner;
Helen Williams;
Monica H Wojcik;
Jessica T Fry;
Kevin Sullivan
Objectives: To examine characteristics and outcomes of T18 and T13 infants receiving intensive surgical and medical treatment compared to those receiving non-intensive treatment in NICUs. Study design: Retrospective cohort of infants in the Children’s Hospitals National Consortium (CHNC) from 2010 to 2016 categorized into three groups by treatment received: surgical, intensive medical, or non-intensive. Results: Among 467 infants admitted, 62% received intensive medical treatment; 27% received surgical treatment. The most common surgery was a gastrostomy tube. Survival in infants who received surgeries was 51%; intensive medical treatment was 30%, and non-intensive treatment was 72%. Infants receiving surgeries spent more time in the NICU and were more likely to receive oxygen and feeding support at discharge. Conclusions: Infants with T13 or T18 at CHNC NICUs represent a select group for whom parents may have desired more intensive treatment. Survival to NICU discharge was possible, and surviving infants had a longer hospital stay and needed more discharge supports.