Transition of youth living with HIV from pediatric to adult-oriented healthcare: a review of the literature

• Type of Material: Article
• Authors: Sophia Hussen, Emory University; Ann Chahroudi, Emory University; Ashley Boylan, Grady Health Systems; Andres Camacho-Gonzalez, Emory University; Stephanie Hackett, Grady Health Systems; Rana Chakraborty, Emory University
• Language: English
• Date: 2014-01-01
• Publisher: Future Medicine
• Publication Version: Author Accepted Manuscript (After Peer Review)
• Copyright Statement: © 2014 Future Medicine Ltd.
• Final Published Version (URL): http://dx.doi.org/10.2217/FVL.14.73
• Title of Journal or Parent Work: Future Virology
• ISSN: 1746-0794
• Volume: 9
• Issue: 10
• Start Page: 921
• End Page: 929
• Grant/Funding Information: R Chakraborty is supported by the NICHDIMPAACTNetwork (HHSN275701300003C), by the CDC (1U01PS003322-01), by the NIH 5R01AA018096 and by the CDC grant (5U48DP001909-04).; A Camacho-Gonzalez is supported by the NICHD IMPAACT Network (HHSN275701300003C), by the CDC (1U01PS003322-01), and is supported by the National Center for Advancing Translational Sciences of the National Institute of Health under Award Number UL1TR0004564.; A Chahroudi is supported by the American Foundation for AIDS Research (108905-56-RGRL), by an NICHD Child Health Research Center Career Development Award (K12 HD072245), and by the NICHD IMPAACT Network (HHSN275701300003C).
• Keywords: PERINATALLY ACQUIRED HIV; pediatric; Life Sciences & Biomedicine; NETWORK; Virology; youth; INFECTION; SERVICES; POSITION PAPER; HIV/AIDS; adolescent; Science & Technology; transition; YOUNG-PEOPLE; EXPERIENCE; ADOLESCENTS; SOCIETY
• Research Categories: Health Sciences, Medicine and Surgery; Biology, Virology; Health Sciences, Public Health

Abstract

Due to advances in antiretroviral therapy, most HIV-infected children and youth now survive into adulthood. Many experts and professional societies have expressed concern about potential disruptions to care when youth living with HIV transition from pediatric to adult-oriented medical care. However, original research focused on this transition process is rare. The existing literature can be organized into the following categories: pretransition assessments of anticipated barriers and concerns; studies describing provider practices during the transition period; and post-transition retrospective analyses after transition to adult care. Most studies had small sample sizes and focused on vertically infected youth. Further work is needed to document clinical outcomes after transition and to evaluate transition protocols that are in place at some institutions.