An experience with the Patient-Reported Outcomes Measurement Information System: Pros and cons and unanswered questions

• Type of Material: Article
• Authors: Terry A. Badger, University of Arizona; Margaret Heitkemper, University of Washington; Kathryn A. Lee, University of California San Francisco; Deborah W. Bruner, Emory University
• Language: English
• Date: 2014-09-01
• Publisher: Elsevier
• Publication Version: Preprint (Prior to Peer Review)
• Copyright Statement: © 2014 Elsevier Inc.
• License: Creative Commons Attribution-NonCommercial-NoDerivs 4.0 International
• Final Published Version (URL): http://dx.doi.org/10.1016/j.outlook.2014.06.009
• Title of Journal or Parent Work: Nursing Outlook
• ISSN: 0029-6554
• Volume: 62
• Issue: 5
• Start Page: 332
• End Page: 338
• Keywords: Fatigue; Symptoms; BREAST-CANCER; Irritable bowel; SYMPTOMS; Depression; Pain; Science & Technology; Life Sciences & Biomedicine; Sexual dysfunction; CANCER-RELATED FATIGUE; Patient-Reported Outcomes Measurement Information System; QUALITY-OF-LIFE; Spanish translation; IRRITABLE-BOWEL-SYNDROME; Nursing
• Research Categories: Health Sciences, Nursing; Psychology, Behavioral

Abstract

The goal of the Patient-Reported Outcomes Measurement Information System (PROMIS) is to create efficient, reliable, and valid assessments of adult and child health. The nursing science literature in which PROMIS measures are used is rapidly expanding. Investigators have been encouraged to consider the integration of PROMIS measures into both descriptive studies and clinical trials. Doing this has created opportunities and challenges for investigators. This article highlights three projects to show the perspectives of nurse scientists who incorporated PROMIS measures into their research. The first project describes advantages of PROMIS to allow for comparisons of a study population with a national sample and to compliment legacy measures. The second project examines issues in the translation of tools for region-specific Hispanic populations. The third project provides a perspective on the use of PROMIS measures to capture cancer-related fatigue and to develop new components of a sexual function scale. As indicated by these three examples, nurse scientists can contribute an important role in moving the PROMIS initiative forward. Results from these types of projects also move symptom science forward within a more interdisciplinary approach to common measures of interest.