Building a mobile hiv prevention app for men who have sex with men: An iterative and community-driven process

• Type of Material: Article
• Authors: Tamar Goldenberg, University of Michigan, Ann Arbor; Sarah J McDougal, University of Washington; Patrick Sullivan, Emory University; Joanne D Stekler, University of Washington; Robert Stephenson, Emory University
• Language: English
• Date: 2015-07-01
• Publisher: JMIR Public Health and Surveillance
• Publication Version: Final Published Version
• Copyright Statement: ©Tamar Goldenberg, Sarah J McDougal, Patrick S Sullivan, Joanne D Stekler, Rob Stephenson. Originally published in JMIR Public Health and Surveillance (http://publichealth.jmir.org), 16.11.2015.
• License: Creative Commons Attribution 2.0 Generic
• Final Published Version (URL): http://dx.doi.org/10.2196/publichealth.4449
• Title of Journal or Parent Work: JMIR Public Health and Surveillance
• Volume: 1
• Issue: 2
• Start Page: e18
• End Page: e18
• Grant/Funding Information: This research was supported by MAC AIDS Fund and the Emory Center for AIDS Research (P30 AI050409).
• Keywords: prevention; community; mobile app; MSM; AIDS; HIV
• Research Categories: Health Sciences, Nursing; Health Sciences, Epidemiology; Health Sciences, Public Health

Abstract

Background: Gay, bisexual, and other men who have sex with men (MSM) account for a disproportionate burden of new HIV infections in the United States. Mobile technology presents an opportunity for innovative interventions for HIV prevention. Some HIV prevention apps currently exist; however, it is challenging to encourage users to download these apps and use them regularly. An iterative research process that centers on the community's needs and preferences may increase the uptake, adherence, and ultimate effectiveness of mobile apps for HIV prevention. Objective: The aim of this paper is to provide a case study to illustrate how an iterative community approach to a mobile HIV prevention app can lead to changes in app content to appropriately address the needs and the desires of the target community. Methods: In this three-phase study, we conducted focus group discussions (FGDs) with MSM and HIV testing counselors in Atlanta, Seattle, and US rural regions to learn preferences for building a mobile HIV prevention app. We used data from these groups to build a beta version of the app and theater tested it in additional FGDs. A thematic data analysis examined how this approach addressed preferences and concerns expressed by the participants. Results: There was an increased willingness to use the app during theater testing than during the first phase of FGDs. Many concerns that were identified in phase one (eg, disagreements about reminders for HIV testing, concerns about app privacy) were considered in building the beta version. Participants perceived these features as strengths during theater testing. However, some disagreements were still present, especially regarding the tone and language of the app. Conclusions: These findings highlight the benefits of using an interactive and community-driven process to collect data on app preferences when building a mobile HIV prevention app. Through this process, we learned how to be inclusive of the larger MSM population without marginalizing some app users. Though some issues in phase one were able to be addressed, disagreements still occurred in theater testing. If the app is going to address a large and diverse risk group, we cannot include niche functionality that may offend some of the target population.